As many of you may know, I was diagnosed with osteopenia in all my bones, with severe osteoporosis in my hip joints ankles and feet. Prolia was designed basically for women after menopause, which is working well for most. Somehow they found that men who suffered prostate cancer also had good outcomes with it. In my case, it may be a little too late and it was hard to get Medicare to approve it for me, but my endo insisted that Medicare pay and by some miracle, they did.
I received the injection last Friday.
I am not sure if it will work for me, but at this stage, if it doesn't, I may not be walking much longer. I hate this and everything along with medical conditions, but sadly, I am somewhat to blame. My diabetes early years, were ugly and I had very high blood sugars for a long, long time. Let me explain: I had/have difficult (labile) diabetes, which most endos could not get me to safe levels. I spent many visits to the ER and ten shots a day was not even working. Most endos were to a point of just blaming me, even though I was doing as they said. NPH was my damnation and faulty mapping solutions with NPH and Regular insulin, was my downfall. I rebelled and I quit trying for many years. I am sure this culminated into the autonomic nervous system problems I am now dealing with.
I feel like half machine these days, with my insulin pump and pacemaker. Many operations to remove destroyed organs and cancer have not helped. My decline was/is rapid and I keep asking myself, if I tried enough, but I just don't know how much more I could have done.
I regret my ignorance, but I have lived a great life anyway. Few people have been able to do all of the things I have done, but I owe many years of my life to our long term diabetes group. You all made me want to do better and stay as healthy as possible. It is too bad that so many of us have fallen away. I am sure many of us feel the loss. I hope that I will be able to come here many more years and I long for the Gang to expand, as I feel you are the lifesavers above all.
Itsme Wayne ... T1 diabetes, RA, Sjogren's, Raynaud's, fibro, Asthma, allergies. Cancer survivor for over 10 years (prostate cancer removed 2/4/04) Dealing with many life threatening conditions. insulin pump since 1999, pacemaker since 2013
This note was written to my friends at Diabetes Living at YUKU and copied here.